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Project Summary:

Despite Canada’s research capacity and many established genomics laboratories, there is no national database or strategy for how to capture, store, and access Canadian genomic data in an equitable, secure, and sustainable manner.

Building on investments from the Government of Canada’s National Strategy for Drugs for Rare Diseases, the Pan-Canadian Human Genome Library, led by Dr. Guillame Bourque, Director of Bioinformatics at the McGill Genome Centre, will provide researchers and health care professionals with a centralized database that reflects the rich diversity of people living in Canada. A core principle of the Genome Library is Indigenous control over genomic datasets of Indigenous Peoples to ensure autonomy and respectful use of Indigenous health data. With this investment in the Genome Library, Canada remains a leader in genomic research that is diverse and equitable and ready to be used by health care professionals.

Project Description:

Government of Canada press release

Project Type:
Funded

Project Role:
Lead, Patient Partnership Team & Member of PCHGL Executive Committee

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